I finally have the energy to write and thank you for giving me a life. My Wilson's syndrome began classically...trauma, trauma, trauma. My best friend, sister, twin, killed herself when we were twenty four. I barely survived, spending months in bed, screaming and crying and withering away. Ten months later, I landed in a hospital for major surgery for 10 tumors, all bigger than tennis balls, which they excised and then burned away all the scar tissue my body had formed in an effort to contain the tumors. I never recovered. The pain was excruciating and unmanageable, even with maximum doses of morphine, for months and months. I then began to develop a whole plethora of horrible symptoms that I never had before:
-horrible periods....I bled for two weeks every month, going through ultra-plus tampons every hour to two hours, tons of unbearable pain, painful diarrhea, clots, fainting
-body odor that did not wash away...I could shower, bathe, shower and come out still stinking to high heaven.
-painfully cold hands and feet
-after never having had a cavity in my life, my next dental check up revealed eight
-night sweats....even though I never felt hot (or even warm) I would soak through four or fiver changes of pajamas every night
-never could I get enough sleep....I could easily sleep 12-14 hours every night and wake up exhausted, needed to nap during the day
-debilitating fear/anxiety/nightmares
-before the suicide and surgery, I was an avid and strong hiker, runner, biker, taught 11 hard core fitness classes every week. Now, I had to sit down to rest after half a flight of stairs, and my muscles would shake and give out when simply brushing my teeth or my hair
-developed asthma, hacking up phlegm almost continually, post nasal drip
-poor immunity...when I got colds, they developed into pnuemonia, lasting months at a time
-"hay fever" that lasted 9 months out of the year, so severe, I could not even drive because I could not see through the tears and sneezing...debilitating
-CRUSHING chest pains and heart palpitations...it felt like my heart beat would stop for 2 or 3 counts, ( I would sometimes collapse), then race wildly to 'catch up'
-painful digestion, embarrassing gas and belching
-arthritis, osteopenia........
Then, after 13 years of suffering , I developed excruciating pelvic pain. Went to emergency and was sent home, because there 'was no fever, therefore no infection'. My temp was 98 degrees. Two days of horrible agony later, I was rushed to the e.r. by ambulance. My fever was 104. I had Toxic Shock , which is often fatal, and spent three weeks in intensive care. My attending physician told me if I had waited even one hour longer before calling the ambulance, I would have died.
So after all this, I find your web site, and start taking my temp. I did have a fever at 98 degrees.....for me.....a big fever. My daily temps ranged as low as 94 (with a mercury thermometer) and averaged around 95. So, I began the T3 in earnest, and after only one pill, my heart palpitations were out of control. My physician would not prescribe the 'antidote' you recommend, so I fought for a few months, cycling up and down, feeling worse then ever, with a resting heart beat of 113!, but wanting so badly for this to work. Then I found one doctor's suggestion on your site for 'mini cycle up , mini cycle down' of taking only one pill each morning, that it would take longer, but was gentler for those not coping well with the standard protocol. It worked. My temp is holding steady after about a year of trying, and all of my symptoms have resolved.
Albert Einstein said there were only two ways of viewing life....either everything is a miracle, or nothing is. You have given me my miracle.
May you be given back threefold all the good you have granted so many others.
Bless you, Gina
